Dear Friends and Family,
The Rogers Family reached our 1 year anniversary with Type 1 Diabetes in March. Anne took Scott to lunch and they made a list of all the words new in our vocabulary: insulin, Humalog, Lantus, basal, bolus, correction factor, highs, low, carb ratio, glucagon and the list goes on.
We’ve learned that if we have pizza or spaghetti for dinner, it sends Scott’s blood sugar over 350 around 3:00am. We’ve learned that if he eats a meal full of carbs made of fruit and vegetables, he needs much less insulin for the same amount of carbohydrate made of starches because he’s usually “low” when I go to bed at 11:00. He gets a juice box and a few goldfish in his sleep. I’m surprised we don’t have any cavities yet.
We’ve made huge strides this year and we continue to grow in our knowledge and management. He went on the OmniPod insulin delivery system last October. (It is the same one Nick Jonas has!) Scott has been a much happier child since then. He wears a “pod” on his body all the time. It is about the size of ½ an egg and a canula is inserted into his skin, delivering insulin 24 hrs a day/7 days a week. We have to change the pod every 3 days although he’s been known to lose one occasionally during wrestling matches with his brothers or soccer at recess.
When Scott was diagnosed, we, as a family, decided that we would make diabetes a part of our lives, but it would not BE our life. We work hard to help him have a normal childhood and not be overly protective, but sometimes it’s not that easy. He went to the movies with his friends and he was supposed to call and let us know how much popcorn he was eating, to decide insulin amounts. He didn’t call. When he returned home his blood sugar was over 500 taking several hours to bring it down to a safe level. How do you get mad at a kid for just being a kid?
Type 1 diabetes strikes without any warning. It has NOTHING to do with the child’s diet: he didn’t eat junk food all of the time and he’s not overweight. It does, however, change their lives forever. He will never again eat a piece of food without thinking about how many carbohydrates are in it. He will never again play soccer without the fear of having a “low” during the game. We will never be able to sleep thru the night without worrying that his blood sugar might drop too low. He will never again go one day without pricking his finger at least 8 times (normally its 10-12).
We also decided as a family that we would support the JDRF in any way and their efforts. They are the largest contributor of money to Type 1 Diabetes research in the world, giving over $1.16 billion since their creation. The JDRF was started in 1970 by parents who believed in a cure for diabetes, just as we do. Won’t you please give as generously as you are able to the JDRF. They are working on finding a cure for Scott and millions of other children like him.
That commitment to support means that we will be participating in the Walk to Cure Diabetes Saturday, November 1st at the Nortel Campus in Research Triangle Park. Please help us support the JDRF by visiting http://jdrf.jrr4.com (which redirects you to the JDRF website) and donating to our team or joining us on the walk. Any amount, no matter how small, is greatly appreciated.
Thank you for any support you can provide.
Anne & Jimmy Rogers, Scott, Brad & Jay